tag:blogger.com,1999:blog-11803655.post932795794676212020..comments2023-09-03T06:03:58.781-07:00Comments on thoughts from the deep recesses: Hemicrania ContinuaCathyhttp://www.blogger.com/profile/09457976257698047569noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-11803655.post-66706138727284982572013-07-23T17:58:54.905-07:002013-07-23T17:58:54.905-07:00Ally - Dr. Bender is in Spokane Washington.Ally - Dr. Bender is in Spokane Washington.Cathyhttps://www.blogger.com/profile/09457976257698047569noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-14016402610575069852013-07-23T13:12:15.952-07:002013-07-23T13:12:15.952-07:00my mother has had these symptoms on one side of he...my mother has had these symptoms on one side of her head for the last 5 + years-- they have not ever tried her on Indocin-- where is Dr Bender located--maybe I could get her in to see him.<br />thanks<br />AllyUnknownhttps://www.blogger.com/profile/05398546672654450934noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-6613822272668696662012-02-16T19:25:15.338-08:002012-02-16T19:25:15.338-08:00Wow I don't come across many people that have ...Wow I don't come across many people that have this disorder. I have had it 3 years now. You are so lucky it is not debilitating to you and that you can run. Most HC sufferers cannot exercise because it makes the headache terribly worse. Did your doctor explain to you the risks associated with indomethacin? I took it 3 months and it was blissful but I ended up being hospitalized twice because of severe gastrointestinal damage caused by it so cannot take it anymore. I wish you luck and hopefully you will stay in the milder range of this illness. I have a blog at http://hemicranialady.blogspot.com if you are interested and some of my followers have hemicrania continua also.Anonymoushttps://www.blogger.com/profile/04914907928383970059noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-55928735140062432992011-12-27T21:47:49.728-08:002011-12-27T21:47:49.728-08:00I'm glad I stumbled onto this blog Cathy. I h...I'm glad I stumbled onto this blog Cathy. I have had HC for the past 10 or so years. Glad to see another believer's perspective. Very encouraging. I enjoy your posts and will be sharing with my wife. Happy New Year to you, Asia, and your family. Greetings from Nashville, TN!<br /><br />Romans 5:3-5Johnnoreply@blogger.comtag:blogger.com,1999:blog-11803655.post-50043159770106297522011-12-23T08:37:57.618-08:002011-12-23T08:37:57.618-08:00I never knew this about you. What a dreadful exper...I never knew this about you. What a dreadful experience!I'm so glad you've found relief!Kellyhttps://www.blogger.com/profile/03415327849982027495noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-1813760892121824542011-12-14T08:27:27.317-08:002011-12-14T08:27:27.317-08:00Dr Bender is one of the best :) so happy to hear ...Dr Bender is one of the best :) so happy to hear this~!!!<br /><br />xomamasuehttps://www.blogger.com/profile/02085852508197199741noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-22751491261499461442011-12-09T13:17:09.885-08:002011-12-09T13:17:09.885-08:00Unfortunately I can believe you have gone 5 years ...Unfortunately I can believe you have gone 5 years without being prescribed Indomethacin.<br /><br />You can read about my very lucky by comparison experience @<br /><br />www.hemicraniacontinua.comMarkhttp://www.hemicraniacontinua.comnoreply@blogger.comtag:blogger.com,1999:blog-11803655.post-80311049366766747812011-12-08T19:28:16.779-08:002011-12-08T19:28:16.779-08:00Glad you found a treatment at least.Glad you found a treatment at least.Katyhttps://www.blogger.com/profile/07821032879992785475noreply@blogger.comtag:blogger.com,1999:blog-11803655.post-56855007621601777102011-12-08T15:27:00.915-08:002011-12-08T15:27:00.915-08:00Cathy! I was diagnosed with Chronic Paroxismal Hem...Cathy! I was diagnosed with Chronic Paroxismal Hemicrania (CPH)! In fact, Dr. Bender was my doctor. Unfortunately, I was allergic to Indomethacin, and it gave me what Bender called a chemically induced case of meningitis. It was the worse pain I've ever experienced until the drug left my body. That meant I had to go through a litany of other drugs to see if something else would work, which left my stomach pretty torn up. After several years, the headaches just went away. I've heard they could come back, but so far, nothing chronic. I'm happy you've found your treatment and diagnosis!SIX Thiryshttps://www.blogger.com/profile/01497905924815309044noreply@blogger.com